anyone with severe brachial plexus injury?

[Elly]

Not sure if I am making the right choices for my daughter that has paralysis of her left arm due to a traumatic brachial plexus injury while learning to ski. Nerve graft surgeries have been unsuccessful and muscle tendon transfers in her situation are much more risky and have low success rates. She is having much more pain now due to the weight of her flaccid arm. She really does not want an amputation and prosthesis. Wondering mostly if just waiting is the right thing to do? I guess we are waiting to see if science comes along with better options - more exoskeletons, implanted electrodes, etc. Dr. Tomaino, you were wonderful meeting with us, about a year ago. I guess I am looking for suggestions to improve her pain and quality of life? Any suggestions?